The UK Renal Registry consolidates the collection and analysis of standardised data relating to the incidence, clinical management, and outcome of renal disease to ensure high levels of care at NHS renal units, measured against the standards set by the UK Renal Association. Previously, this information was gathered by disparate IT systems and fed into the UK Renal Registry on a quarterly basis, where it was manually validated, analysed and published in the Registry’s annual report. However, with the implementation of HealthShare, the UK Renal Registry will now:
- Have a daily data feed
- Reduce the need for human validation and achieve greater accuracy and consistency of reporting
- Be able to produce detailed quarterly reports, providing units with greater clarity on their performance
- More easily track and maintain individual patient records.
Using HealthShare, the Registry will make it easier for clinicians to monitor patient treatment, enabling them to instantly access a patient’s renal data, even if they do not have an existing renal record at that particular treatment centre. This is particularly important for patients moving between transplant and dialysis units and those on holiday, as their treatment can be more accurately tracked and reported, reducing the risk of errors and unnecessary duplicate tests.
Ron Cullen, Director at the UK Renal Registry, said, "The UK Renal Registry is a charitable organisation funded by the NHS and tasked with understanding the care chronic kidney disease patients receive. InterSystems' international reputation and experience with strategic interoperability in healthcare means it is the ideal partner to update our informatics systems nationally and ready our service for the future.
"InterSystems HealthShare will allow us to gather more data, more accurately. The platform will also help us achieve our ambition to expand the registry to over 1 million CKD sufferers, which will include not just stage 5 patients, but also stages 2 to 4. We also hope to use the platform to build new tools for clinicians and patients, such as a medicine reconciliation function, which will improve patient care as well as providing cost savings for the NHS," Cullen added.
Steve Garrington, Vice President, International, InterSystems, commented: "We are delighted that the UK Renal Registry has chosen the InterSystems HealthShare health informatics platform to help clinicians capture, share, understand, and act upon their data in a more timely manner. The Registry provides an invaluable service, and HealthShare will support its goal to improve the quality of care for renal patients in Britain."
The Registry chose HealthShare because of its scalability, the time and cost savings from improved data accuracy, and its ability to provide near real-time data. The implementation is being completed by UK Renal Registry staff.
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About The Renal Registry UK
The Renal Registry is non-profit making and as part of the Renal Association is registered as a charitable activity by the Charity Commission.
The Registry was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society as a resource for the development of patient care in renal disease. It provides a focus for the collection and analysis of standardised data relating to the incidence, clinical management and outcome of renal disease. The UK Renal Registry monitors indicators of the quality as well as quantity of care, with the aim of improving the standard of care.
The Registry provides data for participating renal units, NHS Trusts, commissioning authorities, regional offices, patient groups and researchers. The development of the Registry is open to influence by all interested parties including clinicians, Trusts, commissioning authorities, patient organisations and researchers.