Cystinosis is a rare lyosomal storage disorder affecting around 1 in 100,000 to 200,000 newborns worldwide.
Their report, appearing in the July 12 issue of Science Robotics, maps some of the ethical considerations for governments, policy makers, technologists, and clinicians, and urges stakeholders to come together to rapidly develop guidelines for trust, agency, engagement, and real-world efficacy.